Friday, January 24, 2020

Reality

My cancer will not kill me.  This is not because of my optimism, determination or mental strength.  It is not because people prayed for me to a god who apparently makes choices based on popularity.  I will survive because I was fortunate enough to get this particular cancer at a time when science has developed extremely effective treatments.  I will survive because I have sufficient health insurance to pay for the treatment.  I’m not a warrior fighting cancer.  I’m lucky.

We want simple answers.  Life should be merely a matter of optimism, or trying harder, or determination, or being more kind.  We embrace slogans about good outcomes being a matter of decision, as if we're all at the same place.  Instead reality is complex, as much a matter of luck and circumstance as one’s ability to apply whatever virtues they may have.  The mental and emotional squalor of reality is not vulnerable to bumper sticker slogans.  This is not a Hallmark movie. 

Simplistic positivity belittles the magnitude of problems in any one individual's life.  “You’ve got this” in response to a personal crisis is an insult to the complexity of our lives, either naïve or patronizing.  A friend facing disease, a personal loss, or a financial crisis may not be able to overcome. 

Let people have their bad times.  No amount of fluency in feel good slogans or personal experience with your own problems qualifies you to decide when someone else should move on to acceptance or “snap out of it”.  Denying bad times is denying reality.  Some days I just look at reality and let it sink in.  Not a happy place, but that's the best I'm getting out of those days.  And sometimes those dark days help me make decisions that are ultimately helpful (or not).

I can usually conjure up some anger, which helps.  There is a line in Don Quixote, sung by Aldonza:  "Can't you see what your gentle insanities do to me?  Rob me of anger and give me despair."  Anger works for me, but to believe someone else need only summon fury to get them motivated is disrespectful to the individual that they are.

I've had people to rail to as well, precious people who are willing to accept me at my worst.  The word fuck is key to my survival.  As in "Fuck all this happy 'You got this' shit."  And "fuck this situation."  I think a lot of the happy mantras are based on accepting your current situation.  Fuck that.

Not accepting the role of courageous warrior with a Teflon smile does not mean I’m not coping with my reality.  Indeed accepting that role, while more socially comfortable for people interacting with me, would mean I’m not coping with my situation.  I’d be living a lie, trying to build my future on an imaginary present.  Being frustrated, tired, angry, and depressed are as much a part of my life as hope, courage, and thoroughly appreciating the occasional great day.   

Thursday, January 23, 2020

Accepting A New Normal


The fact that I’m alive speaks to my acceptance of the reality of my present condition.  Accepting the reality of now does not mean accepting the inevitability of an unchanged future.

I am quite capable of discerning the changes time has wrought from the changes due to illness, or in my case the concomitant medications.  I know my own body and my own mind.  If you have struggled with low energy or other physical issues those are your challenges and I wish you success in dealing with them.  That does not mean that I should expect or accept the same problems in myself.

You have no idea what this new normal you are advocating for entails.  I have coped with a variety of symptoms that interfered with my ability to function in life.  The worst of these are much reduced now, precisely because I did not accept them as my new normal and instead vigorously pursued solutions.  I am not done yet.  Fuck acceptance.